Welcome to The Jackson Project
The Jackson Project is a 501(c)(3) public charity formed in the State of Texas in 2014. The organization is formed in honor of Jackson Wallace, affectionately known as J-Bird, who fought a fatal form of Leukodystrophy called Krabbe Disease.
The organization is dedicated to raising awareness about Krabbe and the critical role of newborn screening, supporting families affected by Leukodystrophy, and contributing to research aimed at improving treatment options and improved outcomes for those affected by Krabbe.
Please take a few minutes while you are here to learn more about Krabbe and other Leukodystrophies, how the diseases impact affected patients, and the critical role that early diagnosis through newborn screening plays. These are rare genetic disorders, and your voice is a powerful tool in raising awareness.
Through the Hunter James Kelly Research Institute at the University of Buffalo, the Study of Neurodevelopment in Rare Disorders (NDRD) at the Children’s Hospital of Pittsburgh, and other research labs around the country there have been great advancements in the understanding of these neurodegenerative diseases. Areas of research include natural history studies to understand the progression of the diseases in the many forms that they can take, potential treatment options including myelin repair, and enhancements to diagnostic and prognostic capabilities to improve detection and ultimately treatment and care for those affected.
Your support for The Jackson Project allows us to support families in obtaining the goods and services they need to best care for affected children. Please check back often for latest news and progress updates. Thanks for visiting!