Welcome to The Jackson Project

The Jackson Project is a 501(c)(3) public charity formed in the State of Texas in 2014. The organization is formed in honor of Jackson Wallace, affectionately known as J-Bird, who fought a fatal form of Leukodystrophy called Krabbe Disease.

The organization is dedicated to raising awareness about Krabbe, advocating for expanded newborn screening, contributing to research aimed at improving treatment options and improved outcomes for those affected by Krabbe, and supporting families affected by Leukodystrophy.

Please take a few minutes while you are here to learn more about Krabbe and other Leukodystrophies, how the diseases impact affected patients, and the critical role that early diagnosis through newborn screening plays.  These are rare genetic disorders, and your voice is a powerful tool in raising awareness.

Through the Hunter James Kelly Research Institute at the University of Buffalo, the Study of Neurodevelopment in Rare Disorders (NDRD) at the Children’s Hospital of Pittsburgh, and other research labs around the country there have been great advancements in the understanding of these neurodegenerative diseases.  Areas of research include natural history studies to understand the progression of the diseases in the many forms that they can take, potential treatment options including myelin repair, and enhancements to  diagnostic and prognostic capabilities to improve detection and ultimately treatment and care for those affected.

Your support for The Jackson Project allows us to contribute to these crucial programs and the pursuit for improved treatments and improved outcomes for those affected.  Please check back often for latest news and progress updates.  Thanks for visiting!

The Jackson Project

  • Who we are

    Find out more about mission of The Jackson Project.

  • Meet Jackson

    The Jackson Project was brought to life in honor of Jackson Wallace, affectionately known as J-Bird, who is fighting a fatal form of Leukodystrophy called Krabbe Disease. Learn more about Jackson’s journey.

  • Leukodystrophy

    Find out more about Leukodystrophy, as well as the 40 currently known types.

  • Krabbe Disease

    Find out more about the rare genetic disorder called Krabbe Disease (pronounced “crab-AY”), a part of a group of disorders known as Leukodystrophy.

  • Newborn Sceening

    Lean about the critical role that newborn screening plays in detecting and treating Leukodystrophies in time to prevent irreversible damage and even death. Newborn screening varies by state, we want to make sure every parent is provided the opportunity to make fully informed decisions around their child’s newborn screening.

  • Events

    Our goal is that every Jackson Project event provides people an enjoyable way to be involved in bringing attention to these rare disorders while learning important, potentially life saving, information. We hope that members of our community, and beyond, are empowered to carry this message far and wide.

  • Online Store

    We are looking to expand our line up of gear to help raise awareness about Krabbe Disease and other forms of Leukodystrophy. 100% of the proceeds are put towards The Jackson Project’s mission of supporting families affected by Krabbe and other Leukodystrophies, advocating for expanded newborn screening, and funding research for a cure.

  • Donate

    All proceeds raised through events are put towards the organization’s mission of supporting families affected by these devastating disorders, advocating for expanded newborn screening, and helping to fund research for a cure.

Support The Jackson Project

The Jackson Project is an IRS approved 501(c)(3) public charity. Donations are tax deductible.
Donate to The Jackson Project and support the fight against Krabbe Disease

Connect With Us!

Content on this site is not intended to be used as medical advice in the diagnosis or treatment of any condition and is for informational purposes only. Please seek a medical professional if you have questions or health concerns.

Back to Top