Research

Through the Hunter James Kelly Research Institute at the University of Buffalo, the Study of Neurodevelopment in Rare Disorders (NDRD) at the Children’s Hospital of Pittsburgh, and other research labs around the country there have been great advancements in the understanding of these neurodegenerative diseases.  Areas of research include natural history studies to understand the progression of the diseases in the many forms that they can take, potential treatment options including myelin repair, and enhancements to  diagnostic and prognostic capabilities to improve detection and ultimately treatment and care for those affected.

Learn more here:

Study of Neurodevelopment in Rare Disorders (NDRD) at the Children’s Hospital of Pittsburgh

Hunter James Kelly Research Institute at the University of Buffalo

Bongarzone Lab at the University of Illinois at Chicago

Lysosomal Diseases Testing Laboratory at Thomas Jefferson University

 

 

 

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Content on this site is not intended to be used as medical advice in the diagnosis or treatment of any condition and is for informational purposes only. Please seek a medical professional if you have questions or health concerns.

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